Life with ALS
ALS Diagnosis: The Slowest Part of this Rapidly Progressing Disease
LIFE WITH ALS - January 06, 2021
Becoming diagnosed with Amyotrophic Lateral Sclerosis (ALS) is often a slow and difficult process. It can take 9-12 months for specialists to confirm this diagn... Read More
No More Saying, “ALS Does Not Affect the Mind”!
LIFE WITH ALS - December 23, 2020
Stephen Hawking lived with ALS (Amyotrophic Lateral Sclerosis) for 55 years. After he passed, his life was celebrated by recounting how brilliant his ... Read More
The Burden of ALS and the Value of Family Caregivers
LIFE WITH ALS - December 07, 2020
Each home is different and everyone’s situation is unique, but an ALS diagnosis changes the life of both the pALS (person with ALS) and their family. Whet... Read More
It is Time for Representatives to Step Up to the Plate and Support the ALS Disability Insurance Access Act
LIFE WITH ALS - October 21, 2020
It has been 20 months since ALS (Amyotrophic Lateral Sclerosis) advocacy groups got together to reach more than 360 sponsors in both the house and the... Read More
Fighting Through ALS Together: How Do You Manage Mental Health?
LIFE WITH ALS - September 19, 2020
When fighting through ALS we make it farther when we fight together. Being diagnosed with a chronic disease such as ALS results in life altering chang... Read More
ALS Patient Warren Osborne Wins Venture Fuel Award
LIFE WITH ALS - September 16, 2020
The Venture Fuel Summit of Friday the 11th featured speakers, panels, and competitions from across Utah’s startup and tech scene. But for one winner at th... Read More
Financial Coach: Understanding Medicare And When To Shop Around For Best Coverage–Part 1
LIFE WITH ALS - September 16, 2020
By Diahanna Vallentine This is part one in a series of articles to assist you in preparing for Medicare enrollment and health insurance review. &nb... Read More
A Note from the Founder: Seth’s Ten-Year ALS Update
LIFE WITH ALS - August 31, 2020
On August 24th, 2010, at about this time of day, I was sitting in an exam room, receiving the biggest shock I've yet experienced. A doctor, who I had&n... Read More
Just Diagnosed With ALS? What Equipment is Helpful?
LIFE WITH ALS - August 24, 2020
If you have just been diagnosed with Amyotrophic Lateral Sclerosis, this equipment may be helpful for maintaining the best quality of life: "Your ... Read More
Should You Be Crushing Your Riluzole Tablets? New Easy-to-Swallow Administration Helps.
LIFE WITH ALS - August 03, 2020
Are you or your pALS taking Riluzole? Riluzole is the only FDA-approved treatment for ALS. For you and your pALS it is import... Read More
Connect With ALS Crowd on Social Media: Together We're Stronger
LIFE WITH ALS - July 06, 2020
Connect With ALS Crowd on Social Media: Together We're Stronger ALS Crowd provides numerous ways to connect with other patients, caregivers, medical prof... Read More
Sleep and ALS
LIFE WITH ALS - June 23, 2020
For people with Amyotrophic Lateral Sclerosis, sleeping is a stressful time. Both patient and caregiver suffer from sleep disturbances which are common among pa... Read More
Staying positive with ALS during COVID-19
LIFE WITH ALS - June 04, 2020
The unknown of COVID-19 in itself can be a bit unnerving, but it's crucial we stay as positive as we can, especially with ALS. Added stress can cause i... Read More
